I also find it rewarding to understand and try to get to know the person before their brain injury and it makes it more patient centred. I enjoy looking at the photos, books etc and speaking to the families about them. Which I hope in return is some comfort to the families.
I found myself in the incredibly difficult situation as a relative that I was praying for no responses from the assessments the neurorehab team were doing. I knew that the extent and type of injury my relative had suffered was inconsistent with any meaningful recovery that would be acceptable to him.
I was very grateful to be able to have these honest conversations with the neurorehab physio which ultimately lead to her facilitating, with the clinical team, a Best Interest meeting and the decision to withdraw CANH to allow him the peaceful, timely and dignified death he deserved.
In essence I think its really important for the therapies teams to have the relevant conversations to understand what “hope” means to different families. Some will be hoping for recovery (and the many forms that may take). Others will be hoping for a way to manage a peaceful and timely death for their loved ones.
Intereting to reflect on how our introductions of our role and our work with patients is interpreted by families. For example, the families views on what it means for their relative to be sitting out more. Will definetely make me think more about how I explain these things in future.
Many of our patients families are also very focused on physio. They will look at the time table and say there isn’t enough therapy- but there will be speech therapy, occupational therapy, and a neuropsych assessment. What they will mean is that there isn’t enough physio. Its not that they don’t see the other therapy as not having value, but I also feel they need more education on how important the other therapy is.
Interesting – do other people think there’s a focus on physio too rather than other therapies? You point rings true to me Kim, reflecting on interviews with family members – physio was more often mentioned than OT or SLT – I wonder why?
Really interesting to hear the family members perceptions
I also find it rewarding to understand and try to get to know the person before their brain injury and it makes it more patient centred. I enjoy looking at the photos, books etc and speaking to the families about them. Which I hope in return is some comfort to the families.
I found myself in the incredibly difficult situation as a relative that I was praying for no responses from the assessments the neurorehab team were doing. I knew that the extent and type of injury my relative had suffered was inconsistent with any meaningful recovery that would be acceptable to him.
I was very grateful to be able to have these honest conversations with the neurorehab physio which ultimately lead to her facilitating, with the clinical team, a Best Interest meeting and the decision to withdraw CANH to allow him the peaceful, timely and dignified death he deserved.
In essence I think its really important for the therapies teams to have the relevant conversations to understand what “hope” means to different families. Some will be hoping for recovery (and the many forms that may take). Others will be hoping for a way to manage a peaceful and timely death for their loved ones.
really interested to hear the feedback from family members
very interested perceptions from family members
Intereting to reflect on how our introductions of our role and our work with patients is interpreted by families. For example, the families views on what it means for their relative to be sitting out more. Will definetely make me think more about how I explain these things in future.
Many of our patients families are also very focused on physio. They will look at the time table and say there isn’t enough therapy- but there will be speech therapy, occupational therapy, and a neuropsych assessment. What they will mean is that there isn’t enough physio. Its not that they don’t see the other therapy as not having value, but I also feel they need more education on how important the other therapy is.
Interesting – do other people think there’s a focus on physio too rather than other therapies? You point rings true to me Kim, reflecting on interviews with family members – physio was more often mentioned than OT or SLT – I wonder why?